Category: Communication

‘Twas the Week Before Christmas…

Posted by Dr. El - December 19, 2008 - Communication, Engaging with families, Tips for gifts, visits

And 83-year old Albertha assured me her family was planning to take her home for the holidays.

“Have you talked to them about it?  Have they called the social worker to arrange a pass, and meds, and transportation?”

“No,” she replied, “but they’re coming to get me.”

 

‘Twas the week after Christmas, and Albertha was glum.

“They didn’t show up.  I waited all day, but they didn’t come.”

Albertha spent Christmas day watching other people go out on pass and return, and seeing families arriving with food and gifts and smiles.

 

Now my patients and I start discussing the holidays a few weeks in advance, addressing wishes and practicalities, phoning families if needed, and getting the social worker involved.  We set up a hierarchy of plans.

 

Plan A:  Go home for the day.

Plan B:  Go out to a wheelchair accessible restaurant with family.

Plan C:  Have visitors come with food and go around the corner for coffee, if possible, just to get out.

Plan D:  Stay in with visitors and food.

Plan E:  Talk to family members on the telephone, discussing plans for a future visit, while sitting in a room festooned with cards and holiday decorations.  Attend the nursing home holiday party.

Plan F:  Have a small holiday gathering in the room with nursing home friends after the facility party.

 

Since then, my people know what to expect from the holidays, even if the expectation is that their family might not arrive as hoped.

For Residents: How to Talk to Medical Doctors

Posted by Dr. El - December 8, 2008 - Communication, Medication issues, Resident education/Support groups

Talking to a medical doctor is not like talking to a normal person.  In a regular conversation, one person says, “Hi.  How are you?”  The other says, “Fine.  And yourself?” And they go from there.  If busy Dr. Shah stops by Ms. Crenshaw’s room, inquires how she is, and hears that she’s “Fine,” he’s likely to be on to the next room before Ms. Crenshaw can utter another word.  I prefer the Newspaper Headline Approach.

 

Newspapers grab the attention of readers by revealing the most important and tantalizing details first, so we’re compelled to read on. The same approach, applied to a visit from a physician, would look like this:

 

Dr. Shah:  “Hi.  How are you, Ms. Crenshaw?”

Ms. Crenshaw’s headline:  “I Have Pain.”

 

Now she has Dr. Shah’s attention and he will almost certainly ask her where she has pain and other follow up questions.

 

Another possible headline:  “I Have Two Things I Want to Discuss with You.”

 

This indicates to Dr. Shah that he’s going to need to stick around after the first issue is complete, and it helps him estimate how much time he can spend on each matter.  Following the Newspaper Headline Approach, the most important problem is revealed first.  This way, if Dr. Shah has to leave, at least Ms. Crenshaw had her most pressing concern addressed, and her doctor is aware there is more to be discussed.

 

Perhaps all this sounds simple, but it’s surprisingly difficult not to answer the question, “How are you?” with the response, “Fine,” even when we’re not.  It takes practice to resist the temptation and tell the physician, from the start, what’s really going on.

Throw Me a Party

Posted by Dr. El - December 4, 2008 - Anecdotes, Communication, Tips for gifts, visits

Over the years I’ve worked in nursing homes, my sister has come into the building exactly once. That experienced so disturbed her that she subsequently waited outside in her car, phoning on her cell when she’d arrived to meet me.

 

My sister isn’t unique in her reaction.  Nursing homes are places we like to avoid, unless we are called to work in one.  Which is one of the reasons why visitors are sometimes sporadic, with some family members afraid to come at all.

 

When it’s my turn to be in a nursing home, throw me a big room-warming party.  Make it an open house all day long. Hang up balloons, serve coffee, seltzer, and finger foods, and put on a little Barry White.  Invite my relatives, neighbors, and friends, and show them how to visit me in my new digs.

Setting Boundaries with Residents, Nursing Home Magazine, March 2004

Posted by Dr. El - November 7, 2008 - Communication, Customer service, Long-Term Living Magazine, Resident care

Setting Boundaries With Residents

 

by Eleanor Feldman Barbera, PhD

 

Becoming close to residents, but not too close, takes wisdom

 

“Can you do me this one small favor?” Estelle H. asked,

looking up at her aide imploringly. “Can you get me a

birthday card to send to my granddaughter?” Ms. Skinner

sighed, thinking of all the things she needed to get done

that evening, then looked into those sad brown eyes and

acquiesced. A few hours later, she found herself acquiescing

again when John P. asked her to buy him some cigarettes. She

was going to the store anyway, she reasoned. By the end of

the day she was tired, and the errands took longer than she

had expected.

The next morning she handed the residents their

purchases, trying to hide her resentment at having gone out

of her way. Estelle was so thrilled that Ms. Skinner found

herself agreeing to take care of another task for her. John,

on the other hand, barely acknowledged her efforts and said

he didn’t have the money to pay her for the cigarettes. “As

soon as my check comes in, I’ll give it to you, I promise,”

he said, unwrapping the cigarettes as he spoke. Ms. Skinner

had a feeling she’d never see that money again.

Sound familiar? It’s happened to me, too, I must admit.

Setting boundaries can be difficult under any circumstances,

but it is especially challenging when we are faced with

reasonable requests from people who are legitimately in need

of help. The problem comes when we start taking on too many

extra tasks and begin to feel resentful, taken advantage of,

or burned out. Boundary setting is not just about granting or

not granting favors; it is about establishing appropriate

personal guidelines in our relationships with residents. A

lack of boundaries can foment jealousies and discord among

residents and between staff members, and, when taken to an

extreme, can lead to disciplinary action or job jeopardy. In

order to set appropriate boundaries, it is helpful to be

aware of the dynamics underlying resident/staff

relationships.

 

Balance of Power

While we strive to create warm interpersonal connections with

our residents, the relationship between residents and staff

is inherently unequal. No matter what position we hold at the

nursing home, from porter to aide to medical director, we are

in a position of power relative to the residents. It is

somewhat akin to a parent-child relationship. Because there

is no one else they can rely on to take care of their needs,

residents are dependent upon us the way children are

dependent upon their parents.

Certainly residents can move to a different floor or

different nursing home, but the same power dynamic will exist

there. The bottom line is that the residents need us for

their most basic functioning, and they do not have the

freedom to walk away from relationships with us. With this

powerful role, we have certain responsibilities. We must be

the monitors of the relationship boundaries.

 

Confidentially Speaking

Just as responsible parents maintain an adult sense of

privacy about their own personal lives rather than confiding

in their children, staff members should be careful about what

they discuss with residents and the impact it might have upon

them both.

For example, Ms. Turner is a nurse who likes to take her

work breaks in Annie W.’s sunny third-floor bedroom. Annie is

an 86-year-old resident who maintained her apartment in the

community until a fall limited her mobility. She initially

was a short-term rehab patient but now is planning to spend

the rest of her days at the nursing home. She is bright,

compassionate, and has a good sense of humor. It is no wonder

Ms. Turner likes to talk to her. Annie is patient and

understanding of her problems, and really seems to enjoy

their conversations. She feels a little special, being the

one in whom Ms. Turner confides.

If Ms. Turner is not clear about her boundaries, she

might share her marital problems and solicit the wisdom of

Annie’s years. By doing so, Ms. Turner is putting a lot of

pressure on Annie to help her, although Annie is in the

nursing home for her own needs and problems. She is unlikely

to feel she should withhold her advice, because she needs Ms.

Turner to care for her and wants to be liked by her.

Annie might also feel anxious about giving the “right”

advice and worried about the outcome should Ms. Turner follow

her suggestions. It would be difficult for any resident to

say, “Listen, Dear, I know you are upset, but I’m an old lady

and I have my own troubles. Why don’t you try talking to your

clergy or a marriage counselor.” In addition, Ms. Turner

needs to be aware that, although she might feel that talking

to Annie is a lot like talking to her long-deceased

grandmother, Annie could be a gossip. Does Ms. Turner really

want to take the chance that her marital problems might

become known throughout the facility? What a challenge it

would be to continue working peaceably with Annie if she

revealed a confidence to Ms. Turner’s colleagues.

Another possibility to consider is that if Ms. Turner

breaks her boundaries with Annie, the balance of the

relationship might be disrupted. Residents have occasionally

told me that that they “had something” on a particular staff

member. They knew that if they told the administration about

a boundary infraction that they could get the staff member in

trouble. The staff member knew it, too. Sometimes these

residents used the situation to manipulate the staff member

in question.

Boundary breaking also tends to make the residents feel

emotionally unsafe. If Annie can’t trust Ms. Turner to behave

in a professional manner in their day-to-day interactions, it

raises the concern that Ms. Turner can’t be trusted with

health issues either.

On the other hand, with clear boundaries, the

relationship between Ms. Turner and Annie could be a delight

and a therapeutic experience for both of them. For example,

if boundaries are in place, Ms. Turner will be careful not to

reveal things that are too personal when talking about her

problems. Rather than seeking marital advice, she might ask

Annie’s opinion about what type of food to make for visiting

guests. In this case, Ms. Turner is discussing something she

wouldn’t mind everyone in the nursing home knowing about.

Still, she is helping Annie see that she has knowledge to

pass down to the next generation.

Of course, Ms. Turner will have to deal with the

possibility that Annie will suggest a dish that she has no

intention of cooking, but that is a minor issue that could be

finessed fairly easily. (“Annie, I didn’t make the tuna

casserole, but I liked the idea of a one-dish meal and made

lasagna instead.”)

 

The “Special Child”

Sometimes resident-staff relationships become problematic

because of their exclusivity. Most nursing homes in which I

have worked have rows of residents lined up in the hallway

watching everything that’s going on. They know exactly who is

talking to whom and for how long. They know who is getting

special favors, and who is the favorite and on what shift.

Being in a nursing home can be a very regressive experience,

and this regression can extend to a sibling-like comparison

between residents.

This “sibling rivalry” can undermine the self-esteem of

the less preferred residents and cause jealousies and

conflicts. Edgar, for instance, wondered why the staff hated

him after he saw another resident get immediate attention

when he had been waiting for an hour. He interpreted the

staff’s immediate care of a more engaging resident as his

being personally rejected. Claudette spent many sessions

bitterly complaining about her roommate’s treatment of her.

“She thinks she’s so high and mighty because she’s the

nurses’ pet!” she said one day, after her roommate had pushed

her tray table into an unreachable corner.

Comparisons between residents are a natural part of

group living and sometimes reflect underlying psychological

issues, but often the residents are responding to real

discrepancies in treatment. These do not reflect

maliciousness on the part of the staff, but they can occur

when staff members are not conscious of the impact they are

having on favored residents and their peers.

These situations not only occur in one-to-one

relationships, but they can also reflect a lack of clarity in

administrative policies. For example, one nursing home did

not allow electric wheelchairs until Samantha, a charismatic

young quadriplegic woman, returned from an extended pass in a

sporty red motorized chair and was allowed to keep it. This

set off a chain reaction among residents of jealousies,

complaints of preferential treatment, and plots to get chairs

of their own. Samantha herself became the focus of attention,

and numerous therapy sessions for her and her peers were

spent putting out the fires of resentment.

This situation could have been easily handled by an

administrative statement notifying residents that electric

wheelchairs would now be permitted and under what conditions.

It would have changed the impression that Samantha got

something for which the others were going to have to fight,

and instead would have created excitement regarding new

possibilities.

 

“I’m Not Ms. Turner”

Preferential treatment of residents can sometimes lead to

problems among staff members, too. Using our earlier example,

if Ms. Turner extends special favors to Annie, Annie will

come to expect this as part of her care. When other staff

members work with Annie in Ms. Turner’s absence, Annie might

seem overly needy or demanding. Or Annie might refuse care if

Ms. Turner isn’t providing it. I have heard more than one

complaint that Ms. Turner was “ruining” Annie for the rest of

the team. It is one thing to have a good working relationship

with a resident; it is another to have such a special

relationship that other colleagues can’t fill in when

necessary.

It can be difficult to address these problems with Ms.

Turner because it might seem like she is “just being nice,”

but there is such a thing as being too nice. When a staff

person is overly invested in one particular resident, it is

time to consider what might be in it for the staff person.

For example, is Ms. Turner trying to relive her relationship

with her grandmother? Or perhaps her relationship with Annie

is gratifying Ms. Turner’s need to feel important or

special—a need which should be filled elsewhere. My general

rule is not to do anything for one resident that I wouldn’t

do for any of the residents. That keeps it very clean.

 

Show Me the Money

Money issues theoretically shouldn’t exist in the nursing

home setting, but they do, and they can have dramatic effects

on resident-staff relationships. Money problems generally

arise when staff members are doing favors for the residents.

Sometimes residents will tell me that they were so grateful

that a staff person got them some take-out food that they

bought the staff person dinner also. They consider this to be

a reasonable transaction. I consider this to be highway

robbery. Most of our residents have a monthly income of $50.

Buying even a $5 meal for someone is equivalent to spending

10% of their monthly salary.

Also, once a staff member has accepted money for a

favor, it brings up the possibility of other tasks for which

residents think they should be paying staff members. They

shouldn’t be, but consider the position of the patient with

$50 to her name, wondering whether she should give out

holiday gifts or birthday presents to three shifts of aides

and nurses on her unit.

Favors should be done out of the goodness of one’s

heart, with no strings attached. Residents should be clear

about this from the start. Occasionally a resident will

insist that a staff person take a tip for his or her

inconvenience. This is often because residents are trying to

remove the feeling of dependency, by turning a favor into a

transaction for which they have paid. One strategy for

handling this is to tell the resident, “We can’t take any

kind of payment, and we can’t do the favor if you insist on

tipping.”

Another strategy is for the nursing home to have a

volunteer whose job it is to run errands. My “fantasy nursing

home,” would have a full-time errand runner who takes care of

all the “little things” that need to be done.

It would also have an “Independence Cart” wheeled around

regularly, selling phone cards, stationery, pens, greeting

cards, stamps, eyeglass repair kits, personal care items,

etc. It would be a roving store that took requests, so that

the residents wouldn’t need to be so heavily dependent on

others.

I once worked in a nursing home that had a food cart

that was pushed from floor to floor for the purpose of

selling candy bars and other junk food. It was a dietary

disaster but a practical and financial success. Someone would

go to the discount store and buy bulk items to sell at

reasonable prices. The money made for this service went to

resident trips and activities. Residents and staff alike came

to anticipate the cart’s arrival. Residents even helped to

stock and staff it. This concept, taken in the right

direction, could make everyone’s lives a lot easier.

Perhaps you are not the staff member getting egg rolls

in return for a run to the Chinese restaurant, but you are

more like Ms. Skinner in the beginning of this article. She

is the person waiting for John P. to pay her back for the

cigarettes she bought him. I feel for Ms. Skinner because I

bought a pack or two of cigarettes myself when I first

started, and I’ve yet to see a penny.

I now have a rule that I never purchase something for someone

with the intention of getting paid back later. I have had too

many bad experiences. Not that the money was the issue,

because generally it was a small amount. The problem was that

it completely changed the dynamic of the relationship. All of

the sudden I went from being the helpful psychologist to

“that woman I owe money to.” My advice, if you’ve gotten

yourself stuck in the position in which a resident is acting

funny because he owes you money that you know you are never

going see again, despite continued promises, is to give a

retroactive gift. Tell the resident you decided you are going

to give him the item you purchased for him as a gift and you

don’t want the money back. It will repair the relationship.

And then ban yourself from fronting the money in the future.

I get the money first and give the resident a receipt for it,

such as “$5 for the purchase of hand cream.”

 

Pleasant relationships with the residents are one of the joys

of working in long term care. We all need to “check in” with

ourselves occasionally to make sure our interactions are in

balance. Are favors done out of kindness, rather than to

meet our own needs? Are we treating residents equally well?

Have we resolved any outstanding money problems? Maintaining

clear boundaries provides a strong foundation for healthy,

growing relationships with those in our care.

Managing Resident Requests for Help, Nursing Homes Magazine, Oct 2003

Posted by Dr. El - October 25, 2008 - Communication, Customer service, Long-Term Living Magazine, Resident care

Managing Resident Requests for Help

By Eleanor Feldman Barbera, PhD

 

The Shouters, the Constant Call Bell Ringers and the Complainers don’t have to be that way—you can reshape their behavior

 

Once, when I was new to a facility, I came up to the second floor to find a resident, named Paula, shouting “Nurse, nurse, nurse!” Helpfully, I went to the nursing station and passed along the resident’s call for assistance. They were very nice about it. The next day I came up to the floor again, and again there was Paula shouting “Nurse, nurse, nurse!” And the next day. And the day after that. Her calls had become the unit’s background noise.

Paula was a Shouter.

Anyone who has spent any time in a nursing home knows what I am talking about. Every nursing home has them. When my sister and I visited my grandmother in a home, we used to get very distressed about the lady down the hall. “Why don’t they help her?,” we wondered. We didn’t realize that that lady was calling constantly and often for no discernable reason, but because of fear and existential anxiety. Yet nursing homes are set up to respond to specific needs—there is little time to soothe existential anxiety or to grapple with longstanding psychiatric problems.

So, what can staff do about the Shouters? Fortunately, many things.

 

Defining Neediness

How do we determine which residents cross over the threshold of normality into the area of problem behavior? I don’t believe there is a specific “right answer.” Most of the time a resident’s “neediness” is subjective, and different staff members will have wildly different reactions to it. Some staff members take the needy under their wing; others resent the resident as a disruption. Defining genuine need is part of the problem.

Take use of the call bell, for example—in most cases, residents have no idea what constitutes a reasonable amount of call bell use. I have seen overusers and underusers. One underuser commented to me that he had waited in bed for 45 minutes after vomiting before anyone had come in to help him clean up. “Did you use your call bell?,” I asked. “No,” he said, “I didn’t think it was an emergency.”

That was when I began offering “Call Bell Education,” or “when and how to ask for help.” I found that educating residents empowers them, and that so much of their neediness and irritability comes from feeling out of control of their environment. Providing them with information gives them the ability to make choices about how to handle situations and makes them part of the treatment team. It sets up a collaborative approach to the challenge of getting one’s needs met despite a hectic environment. Once educable residents are educated, it allows the staff to observe when patient behavior is truly out of the normal range. If a patient knows that the average person rings the call bell 6 times a day, yet persists in ringing the call bell 15 times a day, this means the resident is either having physical problems that need a higher level of attention, or needs a referral to the psychologist and/or psychiatrist.

Call Bell Education should be done, ideally, as soon as the resident arrives at the facility, before negative patterns and expectations are set up. The approach should be one of impartially imparted information—“This is what is available to you, this is how it generally works, etc.” With modifications, the strategies outlined here will work for residents with mild-to-moderate dementia. For more severely demented patients, the focus will need to be on staff interventions that are outside the scope of this article.

 

Educating Residents

I generally provide residents with information about their rights, saying, “You’re allowed to have access to your call bell all the time, you know.” Sometimes they don’t understand how to exercise their rights. In such cases, I consider it the resident’s job to find ways of working with the staff. “You may be retired,” I say, “but living in a nursing home is a full-time position, and you have to find ways of letting your new co-workers know what will get the job done.”

I remind residents that, if they are having a conflict with a particular aide, they need to use their best workplace skills to get it resolved. For example, they could make efforts to improve their working relationships, such as learning the names of their aides, or they can take their needs to an aide on another shift, or, if necessary, they can bring up their concerns with the nurse.

It’s important to help residents recognize the workflow of the unit. I often point out to them that the busiest times on the unit are at mealtimes and change of shift, and that they should, if possible, plan ahead to avoid these times for registering their needs. I remind people to ask for everything they need at once, rather than making numerous requests. Residents also need to be aware of how staff members work on their floor. For example, resident Sally was in tears one session after asking several aides to take her off the toilet, only to be met with humiliating refusals. She had been moved from a floor where the aides covered for each other regularly, to a floor where each aide took sole responsibility for the care of particular residents. Once Sally knew this, she stopped asking for things that wouldn’t be granted. She didn’t like the new system, but she learned to work within it.

Residents are often unclear about when it’s okay to ring their call bell or ask for help. Underusers need to be encouraged to speak up, otherwise problems won’t be identified until they have become difficult to treat (for example, skin sensitivity leading to bedsores). Call bell abusers, on the other hand, need to be told that it’s not okay to call the aide repeatedly to change the TV station, adjust room temperature or scratch the itch on their noses, but it is okay to ask for all of those things simultaneously, if the aide is there already helping a roommate.

For call bell overusing residents with some psychological sophistication, I ask them to look for other reasons why they might be continually asking for help. If they are lonely, for example, perhaps we can find other ways of addressing their loneliness.

 

Educating Aides and Nurses

It can be extremely frustrating to have a resident who is constantly requiring attention—interrupting work schedules and taking time away from other, equally deserving residents. Call Bell Education is just one step toward addressing this problem. Another important step is for staff to analyze why the patient is calling for help—to determine “the need behind the need.” Perhaps resident Lillian, who is occasionally anxious, really wants someone to reassure her that her son will come to visit; she just doesn’t know how to ask for that. She could interrupt the staff all morning with requests for water, a sweater, etc., but until someone addresses her underlying feelings, she will continue to seek attention. I have found that the best way to handle this is to meet the ostensible need, and while I am helping her put on her sweater, for example, might comment gently, “I wonder if you’re worried about your son coming to see you today?” Then, whether the answer is yes or no, I might add, “because sometimes when I am anxious about things like that, nothing else seems right.” And then I drop it, unless the resident acknowledges the worry and wants to talk about it.

Lillian would be an example of a resident who has an underlying need that is temporary—a single intervention acknowledging her feelings will suffice. Down the hall, though, you might be dealing with someone like Paula, The Shouter, whose underlying needs are ongoing. She is the type of resident who is likely to have had chronic mental health problems, although dementia patients can exhibit chronic neediness and anxiety as well. It is important to recognize that this behavior has been in place long before the resident arrived at the nursing home, and won’t disappear quickly.

Don’t despair—often a new environment with rewards and encouragement for different behaviors can lead to major changes.

One of the most effective techniques in dealing with The Shouter, for example, is to identify and work with his or her strengths. The idea is to help these residents to be their best selves. For example, Paula was a resident who had an extensive history of depression and disturbed relationships, but she was also a woman who prided herself on her intelligence. Interventions that showcased her intellect improved her self-esteem and gave her attention for possessing a positive quality. You can be very creative here. I might, for example, ask Paula what the “word of the day” was, since she had a good vocabulary, or talk to her about literature or movies. Similarly, if a troublesome resident knows how to crochet or has some type of special skill or knowledge, he or she might be asked to teach other residents or display some of their work at an art show.

Every resident has a “hook.” The fun part is figuring out what it is and how to use it. Hooks can be anything: the snappy way a resident dresses, an ability to speak a second language, or the resident’s role as a grandparent or family historian are examples. Try to get the resident known for this good quality; “brag” about it to other staff people, introduce the resident as “the person to come to with a question about gardening,” for example.

Another factor to consider with The Shouter is whether the environment might be contributing to the problem. Perhaps the resident is feeling isolated and lonely. It is tempting to put Shouters in the rooms farthest from the nurses’ station to minimize their disruptiveness. This makes it more likely, however, that The Shouter will feel obliged to shout many times before getting a response. If such a resident is placed near the nurses’ station, the staff can respond more quickly and break the repetitious pattern.

Other environmental factors might include living in a room located in a noisy and overstimulating area of the nursing home, or having ongoing roommate difficulties. It is important to individualize the analysis and solution of a problem to the resident.

Shouters and Call Bell Abusers should invariably have a psychiatric consult to assess any need for medication for underlying anxiety or other mental health problems. A psychological consultation will not only assist the resident, but help the caregiving team formulate and implement a plan to manage the problem behavior.

Once you have addressed the environment and any underlying pathology, and have started rewarding residents for their strengths, the team must work together to further reduce the resident’s negative attention-seeking. The resident should be seen as part of the team, and, as long as he or she is mentally aware, should be part of the planning process. Using our Shouter as an example, you might say something like: “Paula, when you shout like that, it disturbs the other residents and interrupts the staff. We want to take good care of you, but we have to work together on this. From now on, we will check in with you several times a day when you are quiet, so that you get what you need, and we will try to come as soon as you call for help. If you are able to get the help you need without shouting, we will put a star on your card toward a reward—but if you shout in order to get what you need, we won’t.” The resident should also have a say in choosing an appropriate reward.

This approach to reducing the shouting is classic behavior modification. Negative behaviors are to be discouraged, rather than rewarded. Positive behaviors are to be rewarded, rather than discouraged (all of which is, admittedly, easier said than done).

Now, let’s say that you’ve told Paula that you would be by in a minute, but she begins to shout. This is the time to say “Paula, if you wait patiently, I will come to your room and give you a star toward your reward, but if you shout you won’t get a star.” If you come to Paula’s room when she is shouting and you see that she is okay, you might try asking her to be quiet for five minutes so that she can work toward her reward. (Five minutes is just a guideline; it might have to be one minute for some people.) The important point is not to reward the shouting but to reward the silence.

Patience is key here. I find it helpful, when working on a behavioral modification program with a resident, to remember what happens when we push the button for an elevator and it doesn’t show up. If you are like most people, you push it over and over again because this behavior was previously rewarded with the elevator’s appearing. But if you push the button many times and the elevator still doesn’t arrive, you will eventually conclude that the elevator is broken and you take the stairs. When working with people like The Shouters, we have to realize that we won’t get to behavior change before going through the “button-pushing” phase. An increase in the problem behavior is usually an indication that behavior modification is working! This is the time to tough it out, rather than throw in the towel.

Behavior management should be a unified effort on the part of all staff, from the charge nurses to the activities department to the porters. It doesn’t work well if the day shift is doing it, but the night shift isn’t aware of the plan, or if all the nurses and aides are following the plan, but the well-meaning but uninformed cleaning lady is soothing our Shouter with candy. Everyone has to be part of the team.

It is also essential to work with the patient’s family. Let them know what you’re doing and why because, ideally, they should be part of the team as well.

Communication between shifts and disciplines is one of the more challenging aspects of working with psychological issues in a nursing home. In my “fantasy nursing home,” psychological issues are communicated along with physical problems at the change of shift. The nurse outlines the plan of action for a particular resident, and all staff members involved, regardless of department, would be asked to attend that part of the meeting. Staff members do not necessarily need to know details about why a particular patient is having problems, they just need to know their part in the plan of action.

Another possible communication method is to keep a log of plans, or “contracts,” in an accessible location. The contract consists of an outline of the resident’s problem behavior and the reactive or proactive steps the staff should take in dealing with it. Contracts are used with alert residents as part of an effort to encourage them to participate in their own treatment plan. For example, a Call Bell Abuser who uses the call bell 15 times a day might sign a contract that says that, if he drops the number to 10 (and then to 5 non-emergency uses, after the first contract is successful), he will be rewarded. A “call bell use” log could be kept next to the call bell, with a pen attached, for ease of tracking. The resident and team decide together on a reasonable reward, such as extra time with a favorite staff member, or a treat from the store.

Another option is to offer special inservice training by the psychologist to help staff members establish and implement the plan; this training could be videotaped and then shown to different shifts. Further, you might include in the care plan meeting the psychologist and staff members who are in closest contact with the resident. You might also consider posting the guidelines of the plan in the resident’s room for easy reference. It is likely that some combination or variation of these methods will work within your facility.

 

The Complainer

Unlike the Shouter or Call Bell Abuser, who disturb the staff with myriad problems, there are residents who continually ask for help with one particular issue that may or may not be legitimate. I have seen patients report a problem and then not have it addressed because it falls between the cracks, or is difficult to resolve and requires efforts by multiple departments, sometimes repeated efforts, to address it. Such a resident is often labeled as a Complainer, and his or her requests are no longer taken seriously. Remember, just because someone is a Complainer, it doesn’t mean they have nothing to complain about!

I often find that, if an ongoing complaint is taken very seriously, even if it is not resolved, the resident reaches a turning point and decreases the level of complaining. For example, Sylvia was upset that she wasn’t getting exercise in rehab like she used to. She raised the issue continually, and started to refuse other parts of her care, such as showering or even getting out of bed, because she felt that staff members weren’t taking her seriously. In fact, Sylvia had been scheduled for PT before but had refused to go, and the therapists were legitimately reluctant to bring her in again. It was also likely that she didn’t qualify for rehab any longer. None of these facts diminished her complaints. The intervention in this case was to have someone from physical therapy come up and “evaluate” her, and give her “dynaband” devices and exercises she could use on her own, if she were so motivated. As it happened, her motivation lasted only a couple of days, but she felt listened to and taken care of, and she started to get out of bed and to shower again.

As with many of these problems, the ostensible complaint was not really what was bothering Sylvia, it was that she was feeling neglected. The intervention worked because it met her underlying need for attention.

 

Conclusion

As the caregiver on the other side of these resident outbursts—never an enjoyable position—it helps to remember that: (a) this is not about you personally, and (b) if you allow the resident to vent her feelings without becoming defensive about it but instead try to respond to the underlying needs, you will go a long way toward assuaging her concerns regarding her safety and care and reduce the chances that a real call for help will go ignored.